Happy Halloween!

by Kayte


Overnight

by Kayte

Everything seemed to go well last night! There were a few alarms, mostly false when the babes were wiggling around, the others self-resolved. Max seemed to do better than Lola. He was at 99-100 all night long. Lola had a period where she was riding kind of low around 95, but was back up to 100 early this morning. Not sure exactly what the doctor will be looking for.

The RT is supposed to stop by this morning to pick up the equipment and take it to the diagnostics lab. They’ll download the data and send it to the doctor. Then it could be a few days until we hear from him. On pins and needles!

I have to say I’m very happy we didn’t come home on alarm monitors. Last night was not the most restful sleep, and for mostly false alarms. Hopefully this will be the last of the medical equipment.


Home O2 Study

by Kayte

Tonight is the big night! We got the orders from the doctor to do the home oxygen study. The results will tell us whether or not we’re DONE with this oxygen business. The pulse oximeter equipment was delivered today and the RT showed us how to set everything up (though we’re pretty much experts after 4 months in the NICU). We turned off the babes’ oxygen and attached the pulse-ox before bedtime. The machine will record their oxygen saturation levels overnight, and alarm if they drop to an unsafe level. Tomorrow the RT will pick up the equipment, download the data and send it to the doctor. We should have the results back in a few days. Crossing our fingers!


Great Auntie Poo

by Kayte


Petit Bateau

by Kayte

Lola was not happy with this photo shoot.


Routine

by Kayte

10:00pm – 6:00am
Sleep through the night!

6:00am
Diaper change & sleepily breastfeed in bed.

7:00am – 9:00am
Back to sleep. (Mom too!)

9:00am
Diaper change, bottle feed (with meds), mom pumps.

10:00am – 12:00pm
Morning nap! We usually get out of the house, either to take the dog for a walk or an excursion. If we’re home, it’s time to be productive. Cleaning, laundry, dinner, phone calls, shower, email, pay bills etc.

12:00pm
Diaper change & breast feed (this is SO convenient if we’re out of the house).

1:00pm – 3:00pm
Varies. Sometimes they’ll fall back asleep or take little cat-naps, sometimes we’ll play.

3:00pm
Diaper change, bottle feed, mom pumps.

4:00pm – 6:00pm
Playtime in the nursery – tummy time, read books, baths, dress up & photo shoots. If we’re really ambitious we’ll take another walk around the neighborhood.

6:00pm
Diaper change & breast feed (while mom watches a show).

7:00pm – 9:00pm
Witching hour! Sometimes they’re really good and will either nap or chill in the bouncy & entertain themselves. More often they’re both screaming when Brody gets home from work, and while we’re trying to eat dinner.

9:00pm
Bottle feed (with meds) & diaper change.

10:00pm
Kids: read a book & bedtime.
Parents: wash dishes, watch a show,  mom pumps.


Daddy +2

by Kayte

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Pediatrician

by Kayte

Or “ped” for short. Went for a check-up today and everything looks good. They are both becoming more aware and alert every day. They love making eye contact, and they both smile like crazy. The ped is very happy with their physical growth too. Max is up to 12lb 9oz and 23in long (short & fat). Lola weighs 9lb 6oz 22in long (tall & skinny). They got their flu and pertussis (whooping cough) vaccines. We go back in another 3 weeks.


Houdinis

by Kayte

So much for the Miracle Blanket.

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Lola’s not far behind with her SwaddlePod…


Common Cold

by Kayte

Lola started sounding a little phlegmy/snorty on Saturday so I took her into the pediatrician today. Luckily her lungs sound clear, but she does have a cold. There’s no medication available so all we can do is try to keep her comfortable. We can use a humidifier, saline drops and/or bulb syringe. It should clear up on its own. In the meantime we just need to watch for signs to make sure it’s not getting worse; fever, irritability, loss of appetite, difficulty breathing, lethargy, etc. She’s been acting fine so far.

Oh boy, first sickness. Let’s hope this passes quickly and without event.


Boo!

by Kayte


Happy Feet

by Kayte

For a happy 6-months!


BIG Smile

by Kayte

Watch Lola’s face towards the end 🙂




Homemade

by Kayte

By: Grandma Beth

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STTN

by Kayte

I really hope I don’t jinx myself by writing this, but the past few days Max & Lola have Slept Through The Night! They get their last feed at 9 and are usually asleep by 10. They had previously been waking up once in the middle of the night (which really wasn’t bad at all), but the past few days they slept all the way through until 6! It freaked me out the first time. I woke up, saw that it was light out and jumped out of bed to check on them. Now that they’ve repeated a few times it doesn’t worry me as much. In fact, I think I could get used to this!


Goooood Morning!

by Kayte




Synagis

by Kayte

We stopped by the pediatrician today to get Max and Lola’s first monthly Synagis shot. Synagis is a medication that protects against respiratory syncytial virus (RSV) – a respiratory infection that’s pretty standard for adults/healthy kids, but could lead to hospitalization, re-intubation or worse for these little ones.

The medication is administered monthly during RSV season (Oct – Apr) and it’s pretty hard core. You have to qualify to even get it, and one of the nurses told us it’s about $1,500/shot! (yay insurance) Hopefully we can get through this first year without any major sicknesses.


Pumpkin Pickin’

by Kayte

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Oxygen Status

by Kayte

I’ve been counting down to this day since our last appointment! It’s the one-month mark for us to check-in with an update on weight/growth and eating. Max now weighs 11lb 12oz and Lola is 8lb 15oz. They’re both eating very consistently (Max 5oz/feed Lola 3oz/feed).

The doctor was happy with their growth and wants to order the home oxygen study. Basically they’ll hook the beebs up to a monitor, turn off the O2 and record all their breathing data for 24 hours. If they pass, no more O2!

The only bummer is the doctor’s nurse is out of town all next week and we have to wait for her to get back to set everything up. Patience is a virtue…


Zoo Too

by Kayte

(4) mamas, (6) babies, (2) sets of twins, (3) little girls, (3) stinky boys, (5) preemies, (3) on oxygen, (1) big ole 9-month old!

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